Meet Allisondra
Allissondra was diagnosed with Myasthenia Gravis at 11 months old - one of the youngest ever to be diagnosed. She first presented with absence spells where she would stare off into the distance and would not respond. She is still fighting her battle, but is a strong and determined little girl!
Meet Jensen
Four-year-old Jensen Kinsey of Fairmont, WV, is a little boy who was born too early, stayed in the hospital too long, and endeared himself to everyone because he’s just too funny. Born more than 3 months premature and suffering from Chronic Lung Disease, he is a true miracle!
Meet Justyn
Carolyn and Leslie Jenkins thought their son Justyn had a common flu until they noticed his breath was sickly sweet and his breathing changed in the middle of the night. Those symptoms led them to WVU Medicine Children’s, where he was diagnosed with severe Diabetic Ketoacidosis.
Meet Jordan
Jordan Beland was born with a congenital heart disease and immediately sent to WVU Medicine Children’s for treatment. After a second heart surgery at 13 months old, Jordan was able to live the life of a normal kid.
The Belands, who live in Martinsburg, started noticing some changes in Jordan at around 11 years old. He started having symptoms that doctors had trouble diagnosing. That brought the Belands back to WVU Medicine Children’s.
“He was diagnosed with a very rare form of Hodgkin’s Lymphoma; it’s called nodular lymphocyte Hodgkin’s Lymphoma,” Annette Beland said. “He went through three rounds of chemotherapy and in December of 2012 he came back with a clean scan.”
The Belands, who live in Martinsburg, started noticing some changes in Jordan at around 11 years old. He started having symptoms that doctors had trouble diagnosing. That brought the Belands back to WVU Medicine Children’s.
“He was diagnosed with a very rare form of Hodgkin’s Lymphoma; it’s called nodular lymphocyte Hodgkin’s Lymphoma,” Annette Beland said. “He went through three rounds of chemotherapy and in December of 2012 he came back with a clean scan.”
Meet Meg
Meg Throckmorton's story is one of a terrible injury and an amazing recovery. In the middle of that story is West Virginia University hospitals and an innovative procedure. She was practicing for a dance recital this spring when she fell and damaged her C-2 vertebra. She couldn't move or breathe on her own. Doctors at West Virginia University Hospitals knew a diaphragmatic pacemaker, or pacer, could help Meg, but she wasn't old enough to receive one by FDA guidelines. WVU's doctors didn't give up, though, and neither did Meg or her parents.
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